Saturday, 13 September 2008

Daily Journal

This is more for me, so I can track how I feel from one treatment to the other.

NTR = Nothing to Report

Session 1, 11/09/08
Session 2, 02/10/08
Session 3, 30/10/08
Session 4, 21/11/08

Day 0: Didn't hurt, no problems, fine at night.
Day 0: Not much appetite at night. Some nausea; I forgot to fill the Rx for Zophren.
Day 0: No problems; dinner with friends.
Day 0: No problems; dinner with friends.
Day 1: Lost appetite; everything else normal. Lots of activity. 10 mins. on bike with Van-Ly.
Day 1: More appetite than last time. Pharmacy has to order Zophren & I won't be able to take it until tonight. Getting by on Domperidon and lots of Coke. Just.
Day 1: Crevée! But went to lunch, anyway.
Day 1: Nausea!
Day 2: Tired; read and napped in the afternoon. Lots of niggly random aches & pains. Maybe I always have niggly random aches & pains and don't notice. 10 mins. on bike with Van-Ly. (This is for both of us.) Ate breakfast, sm. lunch, tea and dinner. Good me. Pain all night uterine region.
Day 2: My legs from knee to ankle are covered in red splotches. Nausea -- not uncontrollable. Not very hungry. Rode bike 6 or 7 km. Constipated since Thursday. Don't think I got my liquid quotient; two more glasses of water before bedtime. Sigh.
Day 2: Feel much better; not particularly hungry - snacked on fougasse and Mars bar. Aches have started; hope medicine is helping because, otherwise, I'd be screaming.
Day 2: Nausea!
Day 3: The Itch from Hell. Small nick on thumb from maybe 2 days ago, is not healing.
Day 3: Aches in legs started last night and are going on today. Knees are the worst. OTOH, I'm *not* tired like last month, just a tad unmotivated to work.
DAY 3: Medicines are definitely helping; pain reduced to discomfort.
Day 3: Better!
Day 4: Legs hurt last night and today. Muscular, but it was worse last night. Not so tired. Finished the bloody translation job! Thumb still bleeding if I touch it.
Day 4: Leg joints still hurt; not sleeping well because of it.
Day 4: Not been sleeping well for a couple of weeks. Fall asleep in early hours and today slept 'til 12 and felt better.
Day 4: Tired & depressed
Day 5: Wow, I feel better. Still a bit tired -- I probably need to stop saying that, as I don't think it's going away, but no aches and pains. I even ate a bigger lunch -- although we don't want to over do that one. Still the thumb.
Day 5: Rash is improving. Leg pain the same; also legs feel weak. Hair will come out if I pull. Why doesn't it just fall out when I wash it?
Day 5: NTR
Day 5: Tired & depressed. Stopped Fungizone.
Day 6: I feel normal; very few aches & pains. Long, long day, so was tired. Still the thumb. Appetite back with a vengeance! Sigh.
Day 6: Rash & pain improving. But not last night; trouble sleeping.
Day 6: Went to GP for sleeping pills; home too late to fill Rx.
Day 6:Tired & depressed .
Day 7: Slept until after 10:30. Thumb is starting to heal, so I won't go to doctor tomorrow. I'll ask about it when I go back to the hospital.
Day 7: More improvement, but trouble sleeping, anyway. Maybe sleeping until 11:30 yesterday had something to do with it.
Day 7: NTR.
Day 7:Tired & depressed . Mouth ulcers returned. Re-start Fugizone.
Day 8: NTR.
Day 8: No sleeping this morning. Up early for car test and market.
Day 8: Pills worked; now I'm groggy. Tonight I try just half. Constipated for a few days.
Day 8: Tired & depressed.
Day 9: NTR.
Day 9: Found sore bump in mouth last night. Gone this morning; mouthwash must work. Constipation gone, too.
Day 9: Half a pill is much better.
Day 9: Tired & depressed.
Day 10: Trying to have Reynaud's Syndrome in thumb- and finger-tips, but not quite succeeding.
Day 10: NTR!
Day 10: NTR!
Day 10: Tired & depressed.
Day 11: Tingly finger-tips. Cut hair. 3 stabs of pain in UR in evening.
Day 11: NTR
Day 11: Pain in side during the night.
I might have appendicitis. Sigh.
Day 11: Just tired; things are looking up. Bloody nose.
Day 12: Intermittent stabbing pains UR are back.
Day 12: NTR
Day 12: EmergencyRoom
Day 12: Just tired, but up before noon. Bloody nose. Doctor.
Day 13: NTR
Day 13: NTR
Day 13: EmergencyRoom
Day 13: Platelets way low. Transfusion tomorrow.
Day 14: NTR
Day 14: NTR
Day 14: Home now. Pain is bearable, but no real change.
Day 14: Transfusion. I'm a new woman. At least one with no nosebleed.
Day 15: NTR
Day 15: NTR Isn't this good? I rode my bike 8.5 km today (5 miles).
Day 15: O.K., Busy day.
Day 16: Either today or yesterday, my appetite has returned to normal: huge, but not gargantuan.
Day 16: Tired. Overdid it yesterday.
Day 17: No pressure in my abdomen for the last couple of days. Hmmm.
Day 17: NTR
Day 17: Mieux (better)
Day 17: O.K. I neglected to mention I've been having mild headaches for a week. Not serious migraines, but enough to have had to take my Imigraine a couple of times.
Day 18: NTR
Day 18: NTR
Day 18: Mieux (better)
Day 18: Still sleeping 'til noon, but O.K. otherwise. No headache.
Day 19: NTR
Day 19: NTR
Day 19: O.K.
Day 19: NTR
Day 20: NTR
Day 20: NTR
Day 20: O.K. and no call from the hospital, so I'm good to go tomorrow.
Day 20: NTR

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